Understanding the complexities of caring for residents with MS

Caring for residents with multiple sclerosis (MS) and other neurological conditions living in supported accommodation, can be challenging and complex, given the variability of symptoms and personal experiences.

Understanding MS

MS is the most prevalent chronic neurological condition among young adults, and typically emerges between the ages of 20 and 40. Unfortunately there is currently no cure for MS, and its causes remain unclear, although a mix of genetic and environmental factors are believed to contribute to its onset.

In MS, the immune system mistakenly attacks the protective myelin sheath surrounding nerve fibres, leading to scar formation (sclerosis) and disruption in nerve signal transmission. It results in a myriad of symptoms affecting sensory, motor, and cognitive functions. Among these, fatigue, cognitive changes, muscle stiffness, and emotional impacts are prevalent and require mindful management.

The variety of MS symptoms and their impact

The presentation of MS symptoms can be as varied as the people experiencing them. Common symptoms include fatigue, muscle stiffness, cognitive disturbances, as well as bowel and bladder dysfunction. Invisible symptoms, often the hardest to identify, can prove to be the most debilitating, affecting one's mental health, productivity, and social interactions.

Navigating care and support

MS Plus Respite and Residential Manager, Badri Pokhrel has gathered many insights during his time in supported disability accommodation care that can be valuable to those managing and supporting individuals with MS in community settings, aged care facilities, and even at home.

'Given the multifaceted nature of MS, support strategies need to be comprehensive and tailored to individual needs,' Badri says.

'This includes managing fatigue by balancing activities and ensuring rest, addressing sleep disturbances, providing physical and occupational therapy for mobility issues, and being aware of the impact of medications on symptom manifestation.'

Emotional and mental health considerations

Badri says, 'Mental health plays a critical role in the well-being of those living with MS. It is vital to maintain a peaceful environment, avoid triggers, and ensure social support to manage depression and anxiety.

'Being vigilant about mood changes and reporting concerns to healthcare professionals can prevent deterioration of mental health.'

Advanced MS considerations

In the advanced stages of MS, there is often a significant progression of symptoms, including severe mental confusion, physical impairments, and an increased risk of infections due to compromised immune responses. Palliative care and compassion become integral, ensuring dignity and respect in end-of-life stages.

'Ultimately, fluctuations in symptoms require caregivers to offer individualised and flexible support to help residents live well with MS.

'Reach out to organisations like MS Plus for guidance and support, and don't hesitate to seek professional advice when behaviours or symptoms become challenging.

'Remember, understanding your resident and their story empowers the provision of compassionate, effective care,' Badri says.

For more information or support, please do not hesitate to contact MS Plus.opens in new tab We are here to help you navigate the complexities of caring for people living with complex neurological conditions.